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-   -   RIGHT, ya fucker! (http://www.pixies-place.com/forums/showthread.php?t=34125)

gekkogecko 08-03-2009 11:46 AM

Blech. Well, hope you continue to hold up.

dm383 08-09-2009 04:22 PM

Quick update. In overnight Friday/Saturday for more Chemo - unfortunately it's not regime where I can have it in a pump a la dicksbro - because it canaffect your kidneys, I have to stay in and have my obs done, urine output monitored and a total of 3 1/2 litres of fluids over and above the actual meds.

To say I feel awash at the moment is rather understating things!!

Still here, though, and still fighting! Onwards to another week of radiotherapy, and a neck that is getting red from same even after only 3 treatments!!

:banghead:

Lilith 08-10-2009 06:35 AM

((hugs)) wish I could make it better.

Salacious 08-19-2009 10:36 PM

Oh, DM such news. Sending you love and hugs.

dm383 08-20-2009 03:08 AM

Quote:
Originally Posted by Salacious
Oh, DM such news. Sending you love and hugs.


Thankyou, sweetheart.

Not much happening at the moment. I've now had 11 radiotherapy treatment fractions out of 33, so things are moving on. Not much redness to my neck yet, although there is an interesting pinkiness appearing! Unfortunately, what I had thought to be a tickly cough over the weekend is actually the start of the skinburn to the inside of my throat - not nice at all!
I've now got medication to deal with it, and a nice numbing liquid medicine to enable easier eating. The main issue is tiredness - I seem to be spending longer and longer periods of time sleeping during the day - which is set to increase as time goes on. Still, if that's the worst that happens, I won't be complaining!!

DM

gekkogecko 08-20-2009 09:51 AM

Hey, they'll make a redneck out of you yet.

dm383 08-21-2009 12:48 AM

Quote:
Originally Posted by gekkogecko
Hey, they'll make a redneck out of you yet.


Oh they will indeed - literally!! :rolleyes2

DM

dicksbro 08-21-2009 04:18 AM

Prayers continue for sure, DM! Your about a third done with your treatments and I just finished 5 or twelve. We're moving along and, Lord willing, we're going to be Pixies for a very long time to come! I've found I'm a bit more tired than I used to be. I've always liked an hour nap in the afternoon, but I get in a few more now ... expecially the Sunday and Monday following chemo.

See, now I can blame something besides getting older. ;) That's one of the perks. :)

dm383 08-26-2009 10:37 AM

Had an interesting wee chat with the clinic nurse this morning. It seems that the therapy regime I'm on [aggressive chemo followed by IMRT radiotherapy] is offered only TWICE every month, due to the relative newness of the IMRT and the complexities and time to plan and set up (about 6 weeks!!!)

Now, I knew this was a hard-core treatment option from the start, and I've been lucky enough to "dodge" the majority of the really unpleasant side-effects, but I didn't realise just how uncommon this particular treatment plan actually is. Added to which, 'my' hospital is the only one in Scotland to even offer it as an option; so, I have been blessedly lucky threefold now - diagnosed in time, offered a rare treatment (which seems to be working well, so far) AND few side-effects.

And some people have been dissing the NHS recently - all I can say is, fuck them ALL!! The NHS rocks!! :D

DM

dm383 09-02-2009 12:40 AM

In for my (hopefully) last overnight Chemo on Monday night, finally managed to get home by 2p.m. yesterday! It's weird, though, that I felt fine up until I took the anti-sickness pills they gave me, late last night, and promptly threw up all over the kitchen!! Yuk. (Apologies to those of a fragile disposition!!)

Still, it feels good knowing there are no more in-patient shenanigans to endure!

DM

Teddy Bear 09-04-2009 04:12 AM

((((((dm))))))

Thinking of you and sending prayers and healing thoughts your way.

Never give up!!! Remember it's always darkest just before dawn.

dm383 09-04-2009 06:47 AM

Quote:
Originally Posted by Teddy Bear
((((((dm))))))

Thinking of you and sending prayers and healing thoughts your way.

Never give up!!! Remember it's always darkest just before dawn.


Thanks Teddy.

It's just that of all the things that can happen to a person when they're sick, actually being sick (i.e. vomiting) is the single most objectionable thing I've ever experienced. I've always tried (though not always successfully!) to avoid it wherever possible!!

Teddy Bear 09-04-2009 10:14 AM

Absolutely agree with you 100%, that is the worst!!

Hang in there. *huge hugs* and wishes for better days sent to you!!!!! <3 <3

Lilith 09-04-2009 09:58 PM

What peeves me is that there is a drug that is almost 100% effective at preventing people from puking but it is very $$$$$$ so doctors do not order it.

Teddy Bear 09-04-2009 10:19 PM

I thought there was something they could give but wasn't positive. Thanks Lil for confirming. So now the question is.... How can anybody get this stuff? (In particular our DM.)


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