wyndhy,

Good to see you back! :) I hope your recovery is rapid and your remission complete. :thumb:

What he said.

Wyndhy,

Sure glad you're back home and it's fantastic to see you back at Pixies. We'll keep up the good thoughts and prayers while your healing. :thumbs:

((((( HUGS (gently :) ) )))))

you all are the best bunch of people a girl could ever hope know. :x:

Yes, I wanted details, and no way was any of it going tomake me puke.

So, there are no signs that the cancer had metastisized? That's a major relief.

Hey gorgeous! Not only have I NOT puked...I'm actually smiling! And you don't need to worry, I've always been a big fan of Staples™.

(((((Air Hugs)))))

:console:

Glad to hear things went well and your in good spirits!

a very sincere thanks to you all. (((hugs))

gg, no signs of distant metastatic disease, but there were 2 nodes containing cancer cells, and the tumor itself is multifocal (two kinds of cancer all rolled into one convienient package:D) so radiation is a go after chemo. i get my borg implants out this afternoon (YAY!!!!!!!!!!!!!!!!) and i'll learn mor abouth the path report then. i'm pretty sure i'm still sage 3, maybe 3bor c but with no signs of distant metastasis, that's still good news 'cause i'm still curable.

Fantastic!

Much well wishes your way luv!

That obviously applies only to the cancer.

((((((((((((((wyndhy)))))))))))))))

Love you girl..... I KNOW you'll beat this thing. Glad to see you here and posting.... that's a great sign! :kisser:

well, duh. :p

thanks all. (((hugs)))

Oh wyndhy, I'm so glad to hear you're home and that the prognosis is good.

((((((((((((((((((((((wyndhy)))))))))))))))))))))) ) :x:

Are you really Christina Applegate????? :D

((((((((wyndhy))))))))))

Glad to hear you are on the road to remission.

I will continue praying and sending you good thoughts. :x:

:D lmao @ lil

(((hugs for everyone!)))

I figured I’d move this to personals, this way it’s not cluttering up the main stuff, but still there for anyone who cares to know about what’s goin’ on.

I get my port on tuesday and I have to have another heart test before we can proceed with chemo. apparently the echo I had showed that my heart only pumps out 45 to 50 % of the blood in it with every beat. that’s no good for one of the drugs I’d be on. my doctor is skeptical of those results and so I’m having a MUGA which is a more accurate way to measure. if it turns out I can’t receive this one drug, chemo will not be as effective, but we’ll cross that bridge if we need to. if I can receive it, I’ll have 4 treatments over 8 weeks of one cocktail and 12 treatments over 12 weeks of another. I’m also eligible for a phase III clinical trial that is testing another drug in addition to the standard stuff (phase III’s are only a few steps away from mainstream medicine) there’s a 20% chance I’ll get a placebo, a 40% chance I’ll get the new drug with my second cocktail, and a 40% chance I’ll get the new drug with the second cocktail and an additional 10 rounds (once every three weeks) of just the new drug. basically, I could end up in chemo from anywhere between 20 – 54 weeks.

I may be starting chemo as early as next friday. the earlier the better as far as I’m concerned. I wanted to start today but that damn hippocratic oath got in my way. :p plus we’ve got some thinking to do about the trial.

so far I’m healing up very fine, if I do say so m’self. sore, of course, but nothing too bad, frustrated with my range of motion, and hating that physical therapy is NOT an instantaneous process. patience is not my strong suit. :D

*crosses her fingers the first tests were fuck-ed up-ed*

I have been hearing some commercials in my area about http://www.mammosite.com/ for radiation therapy. Have you read into it?

yes but i'm not a candidate

Hang in there. The chemo gets real old, but it sounds like it is your best option. God bless.

thanks denny ((hug)) say hi to fl for me

And I thought I could complicate things!!

We'll discuss this at PAGAN10.

tell me about it. that's why i have a binder.
pagan sounds like a nice carrot.


i'll be starting my chemo next friday. heart test was good (62%) and i entered the trial. won't know if i got the wonder drug til about the 20th week. also won't know if i'll get the other 10 doses til then either. i have drugs, drugs and more drugs to take. over the counter stuff, too. for now, the treatment is worse than the disease, but it's all for the good of my future and the future of my family. anything that i can do to have a better, brighter future i'm all for.


thanks to all of you - for your support and love and laughter. thanks for listening and thanks for caring. (((huge hugs))) and xxxxsloppy kissesxxx

ha ha. I kept a binder of my kid's stuff when he was little and the CP was so much more ummm CP-ish :p I hope you use fingernail polish to draw little flowers, hearts and lightening bolts all over it :P

i have some pictures and cards from my kiddos slipped inside the clear plastic cover

For now, but if you had ignored the presence of the disease...

glad you didn't.

wyndhy.......do you need to hide the pills in apple sauce to take them :D?

Sounds like you have a handle on this.......big hugs to ya.

apple sauce!? *gag* no way i could keep that shit down.:p:D

fucking snafu! my ekg showed a prior heart attack with poor r-wave progression. total bullshit. the effin tech didn't place the leads in the proper place. dumb asshole. this meant that my oncologist needed to talk directly to the dr. interpreting the test (who obviously just let the machine give him the results without looking closer). the dr. interpreting the results then looked at my other heart tests, and said (surprise!) there was no reason not to proceed with chemo. this delay, as well as a fun game of phone tag, kept my oncologist from enrolling me in the trial on time (if i had actually had a prior heart attack, the study would have to reject me based on the damage the drugs can do to my heart) so now it's entirely possible that the study drug from the trial will not arrive in time for my treatment on friday morning. after talking to my oncologist on the phone, i told her to call me on thursday if the drug came in, otherwise call me on friday when it gets there. it may only push back my treatment for a few hours, or i may get to go as scheduled, but still. grrr and double grrr. clusterfuckingfuck. i swear, just give me an iv stand and a damn stethoscope and i'll do the shit myself.

on a lighter note:p:D- i get to give myself a shot of white-blood cell boosting wonderdrugs the day after my first four rounds. my doc thinks i'm nuts but i told her there was no way i was going to find a sitter for the kids just so i could drive all the way back to the hospital for a shot in my leg that would take all of three seconds. if i can't do it, i know hubby can, and if that doesn't work, my insurance does cover home care if i need it. i say it's just good practice for when i become a junkie:p my insurance is actually mailing the shit to my house. if i'm not here to sign for it, my insurance co absolves itself of all responsibility and i must pay for replacement drugs if needed ... at a cost of 12,900$ (that's 3,225$ a shot people!) guess where i'll be on thursday?:D

uhm...please excuse my potty mouth.:o

oh fuck it. i can curse if'n i wanna. fuckity fuck fuck fuck.:p:D

Um. Everyone in the owrld is a dumb ass at one point or another. I'm sorry you had to deal with so many peeps having their dumbassedness day concurrently.

And fuck, fuck, fuck from me too. Remind me to teach you the fuck song :D

The late great Warren Zevon had the perfect words to sum up a day like yours ;)

My Shit’s Fucked Up

Well, I went to the doctor, I said, "I'm feeling kind of rough"
"Let me break it to you son, Your shit's fucked up."
I said, "my shit's fucked up? I don't see how"
He said, "The shit that used to work, won't work now."

I had a dream, Ah, shucks, oh, well
Now it's all fucked up It's shot to hell

Yeah, yeah, my shit's fucked up It has to happen to the best of us
The rich folks suffer like the rest of us It'll happen to you

That amazing grace Sort of passed you by
You wake up every day, hang your head and cry

Yeah, you want to die But you just can't quit
Let me break it on down, That's some fucked up shit

Yeah, My Shit’s Fucked Up
Fucked Up

awsome^^

I think Scotzoid has it just about right.

:wave:
just checking in. the stuff they gave me to help curb the nausea works great. mildly queasy, tiny constant headache, food tastes weird and i'm pretty tired all the time but mostly good. all things considered, i feel very lucky to have escaped with only a few minor complaints.

And wouldn't it be great if they could just give you the medical WackyWeed for all that. You'd still have all the complaints, but you just wouldn't care.

*toke toke* Du~u~u~u~de! (cough, hack) ~*~giggles~*~ That's some goooood medical! (cough) Anyone for some brownies?! ~*~giggles~*~





duuuude.

MMMM brownies!! ::giggle::

hit hit pass.
i've killed motherfuckers for less. :p

fyi, if you care...

my next treatment is friday. and godDAMN these two weeks went by way too fast. i had a chemo-hangover for about 5 days, mostly from the "pre-meds" and the mild queasiness went away about then, too. still dealing with headaches and heartburn. totally tolerable though. and i actually have something to report that relates to this site! my sex drive is fffffffft. it's not a chore, by any means, but i just ain't feelin frisky. and when i do get to orgasm, it's lame. lacking somehow. not sure if that's a state of mind thing or side effect or a bit of both. sucks though. food tastes a little better, but still not quite right. i switched to baking soda mouthwash, instead of salt, to help with the little mouth sores i get and that seems to have helped some. and i still have my hair! but i suspect it will be gone in about a week. which, i admit, i don't know how i'll feel about. i handled being suddenly boobless pretty well already so i figure the hair should be easy. then again it's so ... right there.

i am going to ask my doc to fiddle with the pre-med dosages, see if i can't get that druggy feeling to go away a wee bit earlier. you see, it's not a good druggy - like a la-la i am happy to be on drugs druggy - more like a fuzzy, can't focus, short tempered, bad trip, jane stop this crazy thing druggy. drugs, drugs everywhere, and not a drop to cheer. :D

Oh, ug. So much a major bitch. Still, it's better than the cancer.

Major illnesses are a bitch, and there's just no way around it.

Still, you do seem to be dealing, so that's good.